This Resource List is for Physical & Care Support for those struggling with illness, at-home care, government resources, and body-based realities.
“Whether you’re preparing, grieving, or supporting someone else, this resource hub offers practical tools, emotional support, spiritual insight, and trustworthy information to help navigate death and dying with greater understanding and care.”
Books:
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Dr. Michael Barbato’s Caring for the Living and the Dying offers compassionate guidance on supporting both the physical and emotional needs of those nearing the end of life. Drawing from his palliative care experience, he emphasizes presence, empathy, and practical care to help caregivers navigate this profound journey with dignity and understanding.
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This comprehensive guide covers essential aspects of end-of-life care, including symptom management, communication strategies, and ethical considerations. It's designed for healthcare professionals and caregivers, offering practical advice for providing compassionate care.
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Suzanne O’Brien provides a holistic approach to end-of-life care, addressing physical comfort, emotional support, and spiritual considerations. The book emphasizes the importance of dignity and respect in the final stages of life.
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Dr. Atul Gawande examines the limitations of modern medicine in addressing the realities of aging and death. He advocates for a shift towards prioritizing quality of life and meaningful conversations about end-of-life care.
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Dr. Mannix, a palliative care physician, shares real-life stories from her practice to demystify the dying process. The book offers compassionate insights into the physical and emotional aspects of dying.
Practical Care Support:
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My Aged Care is the Australian Government's starting point for accessing aged care services. It provides information on eligibility, service options, and connects individuals with approved service providers. The platform also offers guidance on navigating the aged care system and understanding costs.
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Palliative Care Victoria is the peak body for palliative care in Victoria, advocating for quality end-of-life care. It offers resources for professionals and the community, promotes public awareness, and supports the development of palliative care services.
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Dementia Australia is the national peak body providing information, advice, and support to Australians living with dementia, their families, and carers. It offers resources on understanding dementia, managing symptoms, and accessing support services.
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Cancer Council Victoria is a non-profit organization involved in cancer research, prevention, advocacy, and patient support. It provides information on cancer types, treatments, and support services, including resources for end-of-life care.
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Carer Help offers information and resources for carers, including pathways for end-of-life caring. It provides guidance on understanding, preparing, and caring for a person at the end of life, supporting carers in their role.
Equipment Hire:
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Contact your local council for more information.
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The City of Melbourne offers a starting point for older people, carers, and families to access support, information, and services. While specific equipment hire details are not provided, they can guide you to appropriate resources.
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Eastern Palliative Care provides a list of equipment suppliers in the eastern Melbourne area, including:
Fisher Lane Independent Living Solutions
Life Mobility
Rehab Hire
Statewide Home Health Care
The Mobility Store
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Friends of Palliative Care loans out equipment such as electric beds, bedside tables, hoists, and life alarms to help palliative patients receive care at home. Equipment hire requests are made by the patient’s palliative care team.
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Victorian Aids and Equipment Program (VA&EP)
The VA&EP provides subsidised aids and equipment, home and vehicle modifications to help people live safely and independently in their own home. Re-issued items of equipment are also available at no cost to eligible individuals.www.health.vic.gov.au/supporting-independent-living/victorian-aids-and-equipment-program
MND Victoria – Equipment Loan Library
MND Victoria offers an Equipment Loan Library for people living with Motor Neurone Disease in Victoria, providing access to specialised equipment and assistive technology to support safety, independence, and quality of life.
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JDOULAZ
Jancine Hurst and Janelle Champion
1300 536 852
Undertaking Grace Funerals and Deathcare
Claire Hoffman
0406 103 699
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Death Doula Service
Kylie Hutchinson
0413 500 022
Life Rites
Victoria Spence
0421 200 250
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You n’ Taboo
Rebecca Lyons
0417 307 658
Alluvium Water Cremations
Luke & Brendan
(03) 6169 9333
After Death Care:
Please reach out to Deadicate through our contact page for recommendations in other states and territories.
Carer Supports and Training:
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End of Life Essentials is a free, online education platform developed to enhance the quality and safety of end-of-life care in Australian hospitals. It offers evidence-based modules aimed at doctors, nurses, and allied health professionals, covering topics such as communication, symptom management, and ethical decision-making. The program is designed to integrate seamlessly into clinical practice and supports continuous professional development.
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Carer Gateway is an Australian Government initiative providing free, confidential support services to carers. While it doesn't offer formal training, it connects carers with resources such as counselling, respite care, and practical support. The service aims to assist carers in managing their responsibilities and maintaining their well-being.
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The Australian Government funds various organizations to deliver free palliative care education and training programs for health and aged care workers. These programs aim to improve the quality of care for individuals with life-limiting illnesses by enhancing the skills and knowledge of the workforce.
www.health.gov.au/topics/palliative-care/palliative-care-education-and-training